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Living with Parkinson’s Disease: What to focus on after being diagnosed.

Post-diagnosis Advice Parkinson's disease Demoucelle Parkinson Charity
This article was translated using Deepl. We apologise for any errors or curious phrases.

Following a diagnosis of Parkinson’s disease, your head will naturally be spinning with questions, information, instructions and well-meant advice. It’s a lot to take in and it is normal to feel overwhelmed.

Allow yourself time to digest the news and focus your energy on these six points suggested by the Michael J. Fox Foundation for Parkinson’s Research.  We think they are particularly helpful as they provide reassurance, structure and a sense of personal empowerment without trying to ‘’do it all’’ straightaway.

To use a sporting metaphor: this is a marathon not a sprint and it will take time to familiarise yourself with this new terrain. Go step by step, be kind to yourself and get comfortable in your own lane.

Flanders: Vlaamse Parkinson Liga
Wallonia & Brussels: Association Parkinson
Brussels: ActionParkinson


This article draws upon guidance and suggestions provided by Parkinson’s organisations in Belgium, the United States, Canada, the United Kingdom, the Netherlands and France. It aims to provide an overarching view of available advice but can not possibly be comprehensive. We encourage you to visit the websites of your local or regional organisations as these may have specific information suited to your particular needs.  

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