{"id":1920,"date":"2024-04-08T22:39:51","date_gmt":"2024-04-08T20:39:51","guid":{"rendered":"https:\/\/demoucelle.sites-stag.agency\/uncategorized\/parkinsons-research-could-be-in-for-a-paradigm-shift-philanthropic-research-funder-asap\/"},"modified":"2026-04-04T08:43:32","modified_gmt":"2026-04-04T06:43:32","slug":"parkinsons-research-could-be-in-for-a-paradigm-shift-philanthropic-research-funder-asap","status":"publish","type":"post","link":"https:\/\/demoucelle.sites-stag.agency\/nl\/uncategorized\/parkinsons-research-could-be-in-for-a-paradigm-shift-philanthropic-research-funder-asap\/","title":{"rendered":"Onderzoek naar de ziekte van Parkinson \u2018staat mogelijk voor een paradigmaverschuiving\u2019 \u2013 filantropische onderzoeksfinancier ASAP"},"content":{"rendered":"\n

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PHOTO: ASAP\/ANNA ROSE LAYDEN<\/span>\n\n\n\n

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As part of the Demoucelle Parkinson Charity\u2019s effort to accelerate research to find a cure for Parkinson\u2019s disease and to better understand the important role that philanthropists and the charitable sector play\u00a0 in achieving this goal, Anne-Marie contacted Ekemini Riley, Managing Director of the Aligning Science Across Parkinson\u2019s (ASAP) initiative, one of the biggest funders of Parkinson\u2019s research in the world.\u00a0<\/span><\/em><\/p>\n\n\n\n

Funded by the family foundation of Google co-founder Sergey Brin, whose mother has Parkinson\u2019s and who himself has a genetic risk factor for Parkinson\u2019s, ASAP is a coordinated research initiative focused on understanding the underlying science of Parkinson\u2019s disease with the goal of accelerating discoveries. Established in 2019, the initiative makes large, long-term commitments; is prepared to support studies that might otherwise not be funded; and believes in fostering a collaborative and open approach to research. \u00a0<\/span><\/em><\/p>\n\n\n\n

ASAP works with\u00a0<\/span>The Michael J. Fox Foundation<\/span><\/a>\u00a0to implement its five programs, which help to fuel mechanistic research and enable biomarker studies.\u00a0\u00a0<\/span><\/em><\/p>\n\n\n\n

To read a December 2023 Bloomberg article about Parkinson\u2019s research and ASAP, please click here<\/a>.\u00a0<\/span><\/em><\/p>\n\n\n\n

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Why was ASAP established?\n<\/b>The Sergey Brin Family Foundation (SBFF) had an interest in the Parkinson\u2019s Disease (PD) field, given the opportunity to help many more people living with Parkinson\u2019s. Our approach has been to support the incredible work already being done and to fill in gaps in discovery science to ensure that a healthy pipeline of ideas and treatments is flowing from basic science to industry research and discovery (R&D).<\/span><\/p>\n\n\n\n

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<\/a>What does ASAP do?\n<\/b>Our mission is to accelerate the pace of discovery and inform the path to a cure for PD through collaboration, research-enabling resources, and data sharing. We aim to achieve this through the major programs we support under the ASAP umbrella.<\/span><\/p>\n\n\n\n

It is important to know that ASAP is a philanthropically funded initiative, and we primarily seek to collaborate with existing partners in the space to avoid duplicating efforts.<\/span><\/p>\n\n\n\n

When it comes to deciding how we should invest ASAP\u2019s philanthropic resources, there are a few major questions we initially ask ourselves to identify subject areas within the PD space that we might fund. For example, we ask whether there are gaps that still exist in the PD field, why those gaps exist, and if there are resources or foundational knowledge missing that would support filling the gap.\u00a0<\/span><\/p>\n\n\n\n

What distinguishes ASAP from other organizations?\n<\/b>We prefer to consider how we can be complementary to other approaches going on in the field to accelerate discovery and collectively push forward. The key features of the approach we bring to the table include, but are not limited to:<\/span><\/p>\n\n\n\n